Family’s heartache as much-loved mum’s situation worsens

A father has spoken of his heartache as his daughter continues her battle with a life-long sickness from which she is unlikely to recuperate.

Mazhar Hussain shared his daughter Romesa Mazhar’s story, one which has left the household struggling for almost 4 many years.

Romesa, 37, was born with cryptogenic cirrhosis, a situation that impacts the liver.

Romesa, who now has two youngsters – a daughter aged 9 and a son who’s six – has had 5 organ transplants in her life.

Mr Hussain, from Shipley, mentioned his daughter’s well being is failing after her situation worsened in December final yr.

Asian Image: Romesa and her father in hospitalRomesa and her father in hospital (Image: Mazhar Hussain)

“She’s in fixed ache and agony and is struggling to combat the sickness,” he mentioned.

“She’s weak and he or she’s mainly dwelling on remedy.

“Her case may be very distinctive. The majority of individuals together with her sickness don’t reside so long as she has.

“As a mum or dad, it’s very, very onerous.”

He added that issues are significantly tough for Romesa’s two youngsters.

“Her daughter cries so much, particularly at night time,” he mentioned.

“She takes her mum’s garments and cuddles them, she screams and cries and prays to Allah, saying please save my mum’s life and provides her longer to reside.

“It’s insufferable for us to see her upset like that.”

Asian Image: Romesa's children

Romesa’s youngsters (Image: Mazhar Hussain)

Due to Romesa’s sickness, Mr Hussain and his spouse have needed to take care of the kids and supply take care of them.

“We drop them off in school and once we do, her daughter all the time asks if her mum goes to return dwelling, or keep in hospital,” he mentioned.

“She all the time says that she misses her.

“The greatest concern they’ve is of shedding their mum, and what the long run holds. They know they’ve their grandparents, but it surely’s nonetheless not good.”

Asian Image: Romesa and her childrenRomesa and her youngsters (Image: Mazhar Hussain)

Romesa had already had three liver transplants and a kidney transplant by the point she was in her teenagers.

In a Telegraph & Argus article from 1993, Mr Hussain spoke of his hope for Romesa, a yr after they have been pictured along with Romesa’s mum, Parveen Hussain, in one other T&A narrative.

An article from the yr 2000 particulars a then-14-year-old Romesa’s look ahead to her first kidney transplant, which she had in 2002.

Asian Image: A T&A piece on Romesa from 1992A T&A chunk on Romesa from 1992 (Image: Telegraph & Argus)

Asian Image: Romesa in the T&A in 1994Romesa within the T&A in 1994 (Image: Telegraph & Argus)

A 1998 T&A chunk discusses how the household confronted “reliving the agony” as Romesa’s youthful brother, Kabeel – who additionally has cryptogenic cirrhosis – was on the ready checklist for an organ swap.

“When Kabeel was unwell, it was like being again to sq. one once more,” Mr Hussain mentioned.

Kabeel, who’s now 31, had a kidney transplant round 4 or 5 years in the past, Mr Hussain added, and is now okay.

Asian Image: A 1998 front-page story on Romesa and KabeelA 1998 front-page story on Romesa and Kabeel (Image: Telegraph & Argus)

Mr and Mrs Hussain have 5 youngsters in whole. Only Romesa and Kabeel undergo from cryptogenic cirrhosis.

Their different youngsters are Aqsa, Shoaib and Idris.

“Romesa is the eldest, and Kabeel is the third-eldest. So, at one level, two out of our three youngsters had the sickness,” Mr Hussain mentioned.

“After that, docs advised us to not have any extra youngsters.

“But as Muslims, we imagine every thing is as much as Allah, so we took the danger.”

Mr Hussain went on to clarify how the household fulfilled considered one of Romesa’s needs final yr, but it surely later had a adverse impression on her well being.

“It was her dream to go to Pakistan, the place our household are from,” he mentioned.

“She hadn’t been since 2006, and her youngsters had by no means been in any respect.

“She mentioned ‘my kidneys are failing, and I wish to see Pakistan once more’.

“In December final yr, Romesa, her daughter, her mum, myself, my brother and his spouse all went.

“It was just like the journey of a lifetime for Romesa. We stayed for 3 weeks.

“But she felt unwell on the final day. She had a extreme abdomen ache and we needed to take her to hospital, regardless that our flight again dwelling was at midnight.

“They gave her a number of remedy so she might journey safely, however she by no means acquired higher after that incident.

“She’s been struggling, hurting and going downhill since then.”

Asian Image: Romesa with her dad and two childrenRomesa together with her dad and two youngsters (Image: Mazhar Hussain)

Despite the hardship, Mr Hussain hopes that one thing optimistic can come from Romesa’s story.

“I hope it will probably assist different dad and mom and youngsters who’ve been by an analogous scenario,” he mentioned.

“Romesa has fought very onerous, and I hope that may encourage others.”



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